Duchenne muscular dystrophy (DMD) is a genetic condition that affects the muscles, leading to muscle wasting that gets worse over time. DMD occurs primarily in males, though in rare cases may affect females. The symptoms of DMD include progressive weakness and loss (atrophy) of skeletal and heart muscles. Early signs of DMD may include delayed ability to sit, stand, or walk and difficulties learning to speak. Muscle weakness is usually noticeable in early childhood. Most children with DMD use a wheelchair by their early teens. Heart and breathing problems also begin in the teen years and lead to serious, life threatening complications. DMD is caused by genetic changes (DNA variants) in the DMD gene. DMD is inherited in an X-linked recessive pattern and may occur in people who do not have a family history of DMD. While there is no known cure for DMD, there are treatments that can help control symptoms.
For Duchenne patients, they are young men and boys, a brotherhood, fighting.
For everyone, connected by a cause, to find a cure, to improve the lives of those living with the disease.
All connected, all united, brothers in arms, a brotherhood united, a knot holding them together.
In 2007 the Romito family was hit with devastating news, Dominic was diagnosed with Duchenne Muscular Dystrophy (DMD). The neurologist explained to them that Dominic’s muscles would rapidly deteriorate, he would lose the ability to walk, to use his arms, the ability to take care of himself. Eventually Duchenne would attack his heart and lungs and the disease would take his life.
Each one of them has a form of Muscular Dystrophy called Duchenne Muscular Dystrophy (DMD). It effects an estimated 15,000 - 20,000 boys in the United States.